When you’re caring for someone with Multiple System Atrophy, the journey can be challenging - physically, emotionally, and practically. Every person’s experience is different, but there are some general principles and strategies that many caregivers find helpful.
KEY THINGS TO KNOW AND DO
Build a care team early. MSA affects multiple systems in the body, so having a trusted team, including neurologists, physiotherapists, speech pathologists, and other supports can make a big difference as needs change over time.
Make your home safer and your routines simpler. Simple changes like removing trip hazards, using mobility aids, and adjusting daily routines can help maintain safety and independence for as long as possible.
Don't forget your own wellbeing. Caring for someone with MSA can be physically and emotionally demanding. You can’t pour from an empty cup so it's crucial to rest, set boundaries, ask for help, and find small ways to recharge. This can't be emphasised enough.
Coming Soon
We’re building out more resources for this page:
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Links to explainers and guides created by health professionals
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Local carers’ support groups & online forums
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Contact information for allied health providers (speech, OT, physio)
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Tools/checklists for care planning
This takes funding to build properly and keep current, so we're bringing it to life as support allows. If you'd like to help us get there sooner, we'd love to hear from you. Every contribution, big or small, helps us build the support this community deserves.
